American Heart Association provides material on congenital heart
defects and has two endowments listed below.
Whether you are looking for
definitions of medical terms, hospitals caring for people with
CHDs, other people with whom you can network and share
experiences, links to support groups, articles regarding CHDs, or
resources for the CHD community, you have come to the right place!
March of dimes
The March of dimes provides
information and much more on all birth defects including
congenital heart defects.
Brooks CHD Endowment
Zachary Brooks CHD Endowment is a 501 C (3) tax exempt charitable
organization. We are all volunteers working to raise
awareness and funding for Congenital Heart Defects, therefore,
100% of all donations contributed to the Zachary Brooks CHD
Endowment go to CHD Research. No over head costs or
administration costs are ever taken out!
The Legacy Of Life
of Life is an American Heart Association campaign to raise $1
million for congenital heart defect research. When we meet our
goal, these funds will be invested and the Legacy of Life endowment
will be created. This endowment will provide a perpetual
funding source for congenital heart defect research – the most
common birth defect and the leading cause of death from birth
defects during the first year of life.
Support and Information
CHD Families Raising Awareness
are a support group for parents, grandparents and siblings of
children born with Congenital Heart Disease. We have a
mission to not only provide support
those touched by CHD, but to do what we can to spread awareness of
Congenital Heart Disease and the need for research. We do this in
many ways, by contacting the local press, by participating in
CHD Awareness events and by working with our United Heart's
Partners. If you are looking for information and answers on
Congenital Heart Defects, we suggest that you visit the Congenital
Heart Defects website sponsored by Baby's Heart Press. It
is the most comprehensive website on the subject of Congenital
Heart Disease. If you are looking for support or to speak
with other caregivers of children with CHD and learn more about
becoming an advocate for our children, feel free to join our
group. If you have any questions or would like
direction in any way, feel free to email
Family Matching and Books related to
With Heart NACHD- support, education, and resources for families
affected by congenital heart defects and children's acquired heart
Little Hearts, Inc. is a
non-profit organization founded in January 1998. We provide support,
resources, networking, and hope to families affected by congenital
heart defects. Membership consists of families nationwide who have
or are expecting a child with a congenital heart defect.
Our mission is to offer
support and hope to families affected by congenital heart defects
through our support services and to promote public awareness for
this #1 birth defect.
Membership to Little Hearts is free to all families. If you would
like to receive any of the support services we offer or be of
support to other families, please send in a membership form.
CHD Awareness Quilt Project
Congenital Heart Defect Awareness Quilt Project was created to
promote greater public awareness of Congenital Heart Defects (CHD),
while honoring the strength, courage, and commitment of all those
born with a CHD and their families.
Congenital heart anomalies, support,
education and resources.
The Massachusetts Heart Coalition
(Grieving Hearts Support Group)
Massachusetts Heart Coalition, Inc. was formed to eradicate
Congenital Heart Defects (CHDs).
accomplish our goal by:
the public's awareness about the number one birth defect (CHDs),
support further research and focusing legislative attention on
attention by speaking publicly about CHDs
individuals and families coping with CHDs with resources